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If you are interested in being involved in research or would like further information or advice please contact, Shaun Popel (Assistant Research Practitioner) firstname.lastname@example.org or 0117 904 5150
Online Self-management and Health Promotion in early-stage dementia with e-learning for carers.
What is SHAPE? New group-based online educational programme that combines approaches approaches of self-management and health promotion to improve quality of life, wellbeing and health outcomes in people with dementia and their care partners.
Who can take part? People with mild to moderate dementia over the age of 65 with a care partner who is willing to participate.
Programme. Participants will be randomly assigned to one of two research groups involving either the online programme (or no programme, treatment as usual). The online programme involves one two-hour session per week for 10 weeks to discuss how to improve your health and what to expect as your diagnosis progresses.
Contact: Shaun Popel 07815 519 354 and Email: Shaun.Popel@nhs.net
The Bristol Dementia Wellbeing Service took part as partner organisation in the research project “The Dementia Experiences of people from Caribbean, Chinese and South Asian communities in Bristol” overseen by University of West of England (UWE) which has just been published. UWE spoke to older people and their families from African-Caribbean, Chinese and South Asian communities in Bristol in order to find out about the experiences of people with dementia.
The service is currently considering the report’s recommendations and will continue to work in partnership with community groups across Bristol to ensure the service is responsive to the needs and challenges for people with dementia across different communities.
A copy of the report can be viewed here and the suplimentary information here.
You can also hear about the experiences of dementia of people from BME communities in this film.
In the Bristol Dementia Wellbeing Service we are keen to ensure that everyone has the opportunity to be involved in research.
Research studies can take a number of forms and may investigate different aspects of dementia from clinical trials of new medicines to finding out which care treatments work best. Research can be beneficial in a number of ways, including the potential to improve one's own condition, wellbeing or quality of life, the ability to access treatments which may not be widely available and the possibility of helping other people with dementia in the future.
Examples of being involved in research can include talking to researchers about a particular subject, completing a questionnaire or attending a health centre for tests. Even if you sign-up to be involved in research, you are under no obligation to be part of any specific study, and you are always given full information about how you will be involved and what will happen - you can always change your mind at any time.
The Bristol Dementia Wellbeing Service will have a number of studies which are looking for volunteers. If you would like to find out more about the current opportunities, or to find out more about local research in your area, please get in touch with Shaun Popel, our Assistant Research Practitioner on 0117 904 5150 who will be happy to talk to you.
How to get involved in dementia research short film is now available for people with dementia and their carers. For more information about Bristol's Dementia Health Integration Team (HIT), please visit: http://www.bristolhealthpartners.org.uk/health-integration-teams/dementia-hit/research/
You could participate in a clinical study or help shape the direction of services by taking part in research. You can get involved by:
Join Dementia Research is a national service which makes it easy for people to register their interest to take part in dementia research.
Contact: Alzheimer’s Research UK on 0300 111 5111
Contact: Alzheimer’s Society on 0300 222 1122
Join Dementia Research Website: https://www.joindementiaresearch.nihr.ac.uk/
"I learnt that the more in depth knowledge of the illness discovered, the greater the chance of helping others and I hope that some treatment/cure can be found for dementia patients in the future”. (Service user engaged in research)
Sally Townsend, our Community Development Coordinator for schools has produced the following resource list to raise dementia awareness with children and young people.
Join our online singing group where you can meet new people in a friendly, fun and social environment. Singing can improve your brain activity, wellbeing and mood. You don't need to be a good singer to benefit! Join us for fun vocal warm-ups and sing a wide variety of familiar and new songs.
Contact Sophia Simlat
Tel: 07872 866501
A virtual group is available weekly on a Monday afternoon, 1.15pm-2.15pm.
Due to COVID-19, this group is currently being run on Zoom through Trinity-Henleaze United Reformed Church.
First, Third and Fifth Thursday, monthly 2pm-3.45pm
A virtual group is available weekly on a Wednesday morning, 11.15am-12.15pm.
Anyone with concerns about their memory or that of another can attend. Sessions run weekly and often have a guest speaker.
Contact Claire Muscat
Tel: 07872 866 502
A virtual Memory Café takes place weekly on a Thursday afternoon, 3.30pm-4.30pm
Regular Support groups for close family, friends and carers of people with Dementia led by experienced facilitators. The groups are places to share concerns and experiences
This group is on hold due to COVID-19