Case Study #1
I first contacted Bob and Brenda by telephone. I introduced myself and asked how things were going. Bob was very angry and expressed his distrust in our services and social services. The phone call was not successful with Bob telling me to “clear off” and hanging up. The following week I contacted Bob again and suggested I come out to visit him and Brenda at their home.
My first meeting was a little frosty, with Bob reluctant to accept my support. However, after a few visits Bob became more relaxed around me and opened-up about his distrust in social services and how he feels let down by them. Bob was also surprised and relieved to discover that they were able to apply for certain financial support.
Bob showed signs that he was becoming very stressed in his caring role and was verbally aggressive and struggled with his wife’s dementia. After a few more visits and difficult conversations, Bob agreed to give social services another chance and I arranged a joint visit at their home with a social worker. In this meeting we were able to address Bob’s complaints and plan a package of care to suit Bob and Brenda’s needs.
Unfortunately Brenda became ill and was admitted to hospital. After regular contact with the hospital social worker and Bob, Brenda who is now in her end stages of Dementia, returned home with a full package of care in place. Bob and Brenda are now enjoying the rest of their time together with regular contact and support.
Case Study #2
I met with Mrs P who has recently been diagnosed with vascular dementia, together with her daughter and son-in-law.
I have provided information to the family over diagnosis and planning for the future, but have mainly engaged with Mrs P, as she has become somewhat isolated since the death of her best friend 2 years ago, and no longer accesses her local community (i.e. church, local shops, etc.) She once walked to her church, but turned around at the door and came home again.
After discussing Mrs P’s likes and dislikes, I offered some activities that I would take her to try. Mrs P said she would not like to try these things as she is happy at home and scared of buses, having fallen off one many years ago. On my next visit I broached the subject again, but this time asked Mrs P if she would accompany me to an activity which I had not been to before and would value her feedback. Mrs P said this was in the area she grew up in and if it helps then she would try it. We had a good few hours out, and Mrs P has agreed to try the Activity Group with me next month.
Case Study #3
I was recently visiting with Mr C, and his daughter D. Whilst discussing information for carers, D and I also talked about the different activities in the area for Mr C. I have given lots of info and have discussed how I can further support her. D’s words to me were, “I thought I had nobody to turn to before, but now I know you and have your support - I feel I am not in it alone anymore and I have got someone to talk to”.
Friends & Family Feedback
The NHS wants to make sure you experience the best care. The Friends and Family Test is a way of getting feedback about your experience which will help us to improve the quality of service provided by the Bristol Dementia Wellbeing Service.
We have now launched an innovative series of short films in six different languages giving information about dementia and relevant support services in the city. We commissioned the six short films - in Urdu, Punjabi, Cantonese, Somali, Polish and English-language - to address the stigma, misunderstanding and lack of accurate information currently available for the culturally diverse communities across the city.
There are an estimated 25,000 BME people with dementia in the UK. While the number of white, British people with dementia is expected to double by 2051, the numbers of people from BME communities is expected to increase sevenfold within the same timeframe.
Mrs Kwan, who is originally from China, has lived in Bristol with her husband for 45 years and raised their family here. She is now carer to her husband who has dementia. She explains: “Life changes significantly for someone with dementia, and for their carer and family too. It’s really important to get help. In our community, a lot of people don’t know what dementia is, we don’t even have a word for it. This means that lots of people with the disease run the risk of being forgotten.”
Within each of the films, medical experts, people affected by dementia and members of the relevant communities explain what dementia is, outline how people can gain a diagnosis and access the free support available from the Dementia Wellbeing Service.
This issue is echoed across many communities, as well as within white-British communities, and one which the films address head on.
Khadra Abdi, who cares for her mother with dementia and is active in the Somali community in Bristol says: “Many older people within our community have limited English language, and when they don’t understand what dementia is it can be very scary. These films explain about the disease and the help available in a simple, clear way, and most importantly in their native language, making it far easier for them to gain a genuine understanding of dementia, get a diagnosis from their GP and to get support from the Dementia Wellbeing Service”.
You can now view the films from our homepage or via our YouTube channel and hardcopies are available from 0117 904 5151
Posted at 09:16 on 01/08/2017
BREAKING NEWS! Our new short films talking about dementia and how you get can support in Bristol are now live!
Please click on the links under 'Dementia - Your questions answered' above
Posted at 16:11 on 31/07/2017
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