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"I learnt that the more in depth knowledge of the illness discovered, the greater the chance of helping others and I hope that some treatment/cure can be found for dementia patients in the future”. (Service user engaged in research)
Dementia with Lewy Bodies Research
If you have a diagnosis of dementia with Lewy Bodies, you could help with a research study investigating how genetics affect the development of the disease
For more information please contact Shaun Popel, Bristol Dementia Wellbeing Service
0117 904 5150
Do you have a mild cognitive impairment (MCI)or Alzheimer’s disease?
Are you interested in taking part in research that uses new technology?
If so, you may be suitable to take part in the
CUBOId study, which is testing whether SPHERE technology is useful for diagnosing memory problems.
Ask your doctor about this opportunity or contact the team: Telephone: 0117 414 8238
The Bristol Dementia Wellbeing Service took part as partner organisation in the research project “The Dementia Experiences of people from Caribbean, Chinese and South Asian communities in Bristol” overseen by University of West of England (UWE) which has just been published. UWE spoke to older people and their families from African-Caribbean, Chinese and South Asian communities in Bristol in order to find out about the experiences of people with dementia.
The service is currently considering the report’s recommendations and will continue to work in partnership with community groups across Bristol to ensure the service is responsive to the needs and challenges for people with dementia across different communities.
A copy of the report can be viewed here and the suplimentary information here.
You can also hear about the experiences of dementia of people from BME communities in this film.
In the Bristol Dementia Wellbeing Service we are keen to ensure that everyone has the opportunity to be involved in research.
Research studies can take a number of forms and may investigate different aspects of dementia from clinical trials of new medicines to finding out which care treatments work best. Research can be beneficial in a number of ways, including the potential to improve one's own condition, wellbeing or quality of life, the ability to access treatments which may not be widely available and the possibility of helping other people with dementia in the future.
Examples of being involved in research can include talking to researchers about a particular subject, completing a questionnaire or attending a health centre for tests. Even if you sign-up to be involved in research, you are under no obligation to be part of any specific study, and you are always given full information about how you will be involved and what will happen - you can always change your mind at any time.
The Bristol Dementia Wellbeing Service will have a number of studies which are looking for volunteers. If you would like to find out more about the current opportunities, or to find out more about local research in your area, please get in touch with Shaun Popel, our Assistant Research Practitioner on 0117 904 5150 who will be happy to talk to you.
How to get involved in dementia research short film is now available for people with dementia and their carers. For more information about Bristol's Dementia Health Integration Team (HIT), please visit: http://www.bristolhealthpartners.org.uk/health-integration-teams/dementia-hit/research/
You could participate in a clinical study or help shape the direction of services by taking part in research. You can get involved by:
Join Dementia Research is a national service which makes it easy for people to register their interest to take part in dementia research.
Contact: Alzheimer’s Research UK on 0300 111 5111
Contact: Alzheimer’s Society on 0300 222 1122
Join Dementia Research Website: https://www.joindementiaresearch.nihr.ac.uk/