How do you explain dementia to a six year old? The Ally Bally Bee Project is on a mission to make such difficult conversations a little easier with our personalised children’s book about dementia.
Imagine being able to explain “granny’s dementia” to your child with a book that features both child and grandparent as the main character. From names and appearances to certain behavioural traits (after all, dementia affects everyone differently) – we plan to allow for such customisation through an interactive website. Simply create the story online then click to have it delivered to your door!
In the Bristol Dementia Wellbeing Service we are keen to ensure that everyone has the opportunity to be involved in research.
Research studies can take a number of forms and may investigate different aspects of dementia from clinical trials of new medicines to finding out which care treatments work best. Research can be beneficial in a number of ways, including the potential to improve one's own condition, wellbeing or quality of life, the ability to access treatments which may not be widely available and the possibility of helping other people with dementia in the future.
Examples of being involved in research can include talking to researchers about a particular subject, completing a questionnaire or attending a health centre for tests. Even if you sign-up to be involved in research, you are under no obligation to be part of any specific study, and you are always given full information about how you will be involved and what will happen - you can always change your mind at any time.
If you are interested in taking part in research, please get in touch with Shaun Popel, our Assistant Research Practitioner on 0117 904 5150 who will be happy to talk to you.
Provide support through a variety of groups and activities, including:
Singing for the Brain ®
Sports and Social Club
There is also a Befriending Service which provides personalised support for people with dementia and/or carers. There is a charge for this service.
Contact: 0117 961 0693.
The service is open Monday to Frieday between 9.00am – 2.00pm. There is an answerphone for outside office hours.
Email address: email@example.com.
Unfortunately many older people, especially those with dementia, are targets for criminal scams to defraud them of their money. Jessica's Story is a powerful account that highlights the financial and emotional impact this can have on people and their families. Scams can take a number of forms:
Online scams, including fake emails
What you can do
- Ensure you have good virus protection online
- Keep an eye out for any emails that seem ‘too good to be true’ – they are!
Bogus traders on your doorstep
What you can do
- You can put up a sign saying that uninvited callers are not welcome
- Keep your door locked with the chain on, and ask to see any caller’s ID cards and call their company to see if they are genuine. If you have any doubts, don’t let them in – it is your home
- Tell them you are not interested or that it is inconvenient.
Phone scams and cold calls
What you can do
- You can sign up to the Telephone Preference Service – a free opt-out service so that you do not receive unsolicited sales or marketing calls
- You can also purchase a call blocker such as TrueCall which blocks unwelcome callers and asks unrecognised callers to identify themselves before it puts them through
Postal scams, such as ‘unclaimed prize’ scams, bogus debt letters, lottery or ‘hard luck story’ scams.
What you can do
- You never need to send money to claim a prize/inheritance
- Register with the Mailing Preference Service (MPS) – this can stop junk mail but the postal service has a legal obligation anything that is addressed directly to you
- Put a ‘no junk mail’ sign on the front door.
Useful advice on spotting and avoiding scams can be found on the Age UK website
And the Metropolitan Police have produced a handy Little Book of Big Scams which you can view here
To report a scam call Action Fraud on 0300 123 2040
People can also be targeted by legitimate charities if they already support one or more charities, and this can place an undue pressure on people to sign-up for more charities than they can afford. A Fundraising Preference Service is currently being developed to enable people to have more control over what charities contact them and how they are contacted.
We have now launched an innovative series of short films in six different languages giving information about dementia and relevant support services in the city. We commissioned the six short films - in Urdu, Punjabi, Cantonese, Somali, Polish and English-language - to address the stigma, misunderstanding and lack of accurate information currently available for the culturally diverse communities across the city.
There are an estimated 25,000 BME people with dementia in the UK. While the number of white, British people with dementia is expected to double by 2051, the numbers of people from BME communities is expected to increase sevenfold within the same timeframe.
Mrs Kwan, who is originally from China, has lived in Bristol with her husband for 45 years and raised their family here. She is now carer to her husband who has dementia. She explains: “Life changes significantly for someone with dementia, and for their carer and family too. It’s really important to get help. In our community, a lot of people don’t know what dementia is, we don’t even have a word for it. This means that lots of people with the disease run the risk of being forgotten.”
Within each of the films, medical experts, people affected by dementia and members of the relevant communities explain what dementia is, outline how people can gain a diagnosis and access the free support available from the Dementia Wellbeing Service.
This issue is echoed across many communities, as well as within white-British communities, and one which the films address head on.
Khadra Abdi, who cares for her mother with dementia and is active in the Somali community in Bristol says: “Many older people within our community have limited English language, and when they don’t understand what dementia is it can be very scary. These films explain about the disease and the help available in a simple, clear way, and most importantly in their native language, making it far easier for them to gain a genuine understanding of dementia, get a diagnosis from their GP and to get support from the Dementia Wellbeing Service”.
You can now view the films from our homepage or via our YouTube channel and hardcopies are available from 0117 904 5151
Their objective is to enable Bristol to become THE Dementia Friendly City of the UK.
They do this by using two main tools, “Dementia Friends” and “The Purple Angel Campaign”, to increase Dementia Awareness across the city.
They visit anybody, including businesses, schools, youth and children’s organisations (e.g. Scouts, Guides, Cubs, Brownies, Beavers and Rainbows), youth clubs, social clubs, community clubs, activity clubs, community organisations, other voluntary organisations, care agencies, other charities, faith groups, political groups, basically anyone prepared to listen and take part!
Sessions generally are an hour long and are free.
They also campaign on issues relevant to people with Dementia and their carers e.g. closure of public toilets and closure of public libraries,
Contact: Tony Hall 0117 968 1002
Bristol Dementia Action Alliance Website
Anyone can become a Dementia Friend. It's about having more understanding about dementia and the small things you can do to help. Being a Dementia Friend isn't about volunteering or fundraising (although you can do that if you'd like); it's about turning understanding into action. To become a Dementia Friend visit the website at: www.dementiafriends.org.uk.
Have your voice heard and join the Dementia HIT Volunteer Panel
The Bristol Health Partners’ Dementia Health Integration Team (HIT) has set up a Volunteer Panel. You can join the panel if you would like to hear about patient & public involvement activities relevant to dementia.
Involvement activities might include:
You don’t have to take part in any of the activities you are offered.
The panel is open to people with dementia, their carers and interested members of the public.
Further information can be found on their website here
email: firstname.lastname@example.org / Tel: 0117 4148238
Gives children, young people and adults across Bristol a powerful voice locally and nationally. Local Healthwatch works to help people get the best out of their local health and social care services.
Healthwatch is all about local voices being able to influence the delivery and design of local health and social care services.
Contact: 0117 269 0400
Text ‘bris’ followed by your message to 07860 021 603.
Contact email: email@example.com.
IDEA is a free online resource aimed at improving the quality of life for people with dementia.
Living Well With Dementia - Alive! Activities
This course will help anyone who is in regular contact with someone living with dementia. This includes: carers, family members, friends and care staff.
Our trainers have a wealth of experience running stimulating activities with people living with dementia. All the course elements have a strong basis in proven therapeutic techniques.
For further information please visit the Alive! website
You could participate in a clinical study or help shape the direction of services by taking part in research. You can get involved by:
Join Dementia Research is a national service which makes it easy for people to register their interest to take part in dementia research.
Contact: Alzheimer’s Research UK on 0300 111 5111
Contact: Alzheimer’s Society on 0300 222 1122
The Social Care Institute for Excellence (SCIE) improves the lives of people who use care services by sharing knowledge about what works.
We are a leading improvement support agency and an independent charity working with adults’, families’ and children's care and support services across the UK. We also work closely with related services such as health care and housing.
Promotes and supports volunteering in the city.
Drop-in available Tuesdays and Wednesdays between 11.00am – 3.00pm.
Contact: 0117 989 7733
Contact address: Volunteer Bristol, Royal Oak House, Royal Oak Avenue, Bristol, BS1 4GB.
This document is aimed at people living with dementia and their carers to help them to know what good quality services should look like.
The expectations listed apply to all of the different types of health and social care services a person with dementia might need to use, including services provided at home, in the community and in hospitals.
Posted at 09:16 on 01/08/2017
BREAKING NEWS! Our new short films talking about dementia and how you get can support in Bristol are now live!
Please click on the links under 'Dementia - Your questions answered' above
Posted at 16:11 on 31/07/2017
If you need information about the service contact us today